BBS International is a federation that will enable us to collaborate together on a global scale, to unite efforts, to collect and publish information on the disease, to increase network cooperation, to improve research by avoiding unnecessary duplication.
Created on 03 October 2020 by 5 countries (France, USA, UK, Italy, Netherlands). Members are active national patient organisations representing patients and their families affected by BBS. Together, they are the voice of approximately 40,000 patients worldwide.
About BBS FOUNDATION
To find and build a network of all associations and families of people with BBS .
Coordinate international research efforts.
Promote, support and stimulate the exchange of knowledge and understanding of BBS at the international level.
Facilitating and promoting communication.